Justina Pelletier’s nightmare has dragged on for over a year. Diagnosed in 2012 with Mitochondrial Disease, Justina was taken to Boston Children’s Hospital in February of 2013 because of the flu. Doctors there replaced her mito diagnosis with one of somatoform disorder, a psychiatric condition. When her parents disagreed, the hospital accused them of “medical abuse” – for following the instructions of their own licensed and respected physicians! – and the state of Massachusetts removed Justina from their custody.
Since then, this vibrant 15-year-old ice skater has deteriorated. No longer able to walk, she is confined to a wheelchair. She spends her days in constant pain that her new custodians tell her is all in her mind.
Meanwhile, her loving parents are powerless to help her, denied their right to make potentially life-saving decisions for their daughter.
How do you stop this nightmare from coming to your state? Ultimately, the proposed Parental Rights Amendment to the U.S. Constitution will protect parents in every state. But today’s victims don’t have that kind of time. So RIGHT NOW ParentalRights.org is working to preserve the decision-making rights of parents at the state level through model legislation: (a) The liberty of a parent to direct the upbringing, education, and care of the parent’s child is a fundamental right.